Shaping the future: Our strategy for research and innovation in humanitarian response.

A global organisation that finds solutions to complex humanitarian problems through research and innovation..
Our purpose is clear: we work in partnership with a global community of humanitarian actors, researchers and innovators to improve the quality of humanitarian action and deliver better outcomes for people affected by crises.
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Principal Investigator: Dr. Gasim Abd-Elfarag


This project aims to sustainably reduce the disease and social burden caused by onchocerciasis in villages affected by conflict in South Sudan. The study will implement and test innovative, cost-effective community-based interventions to prevent children from developing onchocerciasis and its associated morbidities, including epilepsy and nodding syndrome. The project seeks to decrease the suffering of those affected by epilepsy in onchocerciasis endemic regions in South Sudan.

Dr. Gasim Abd-Elfarag

Amref Health Africa

Evidence-based interventions are key in addressing diseases that debilitate communities. This research is expected to provide the needed evidence to decrease the burden of disease caused by onchocerciasis-associated epilepsy through effective community-based interventions.

Expected Outcomes

The research will produce evidence on how to reduce the burden of disease caused by onchocerciasis in conflict affected settings through implementation of innovative, cost effective, community-based interventions. It aims to provide proof that optimising treatment and care provided to people living with epilepsy, including nodding syndrome, will improve their quality of life and enhance their social integration. This should have consequent positive economic and societal impacts on affected families and villages.

Latest Updates

The fight to cure South Sudan's mysterious neurological disorder

Mar 2024

This study is featured in The Guardian's article on nodding syndrome in South Sudan.


Blog published

Jun 2023

Learn about the progress of Amref-led research, that preceded this study, and what the 2023 research project aims to achieve.

A community data collector interviewing and screening a family for epilepsy (nodding syndrome) cases during the post-intervention epilepsy survey in villages in Maridi, 2022. Credit: Dr. Stephen Jada/Amref


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