Principal Investigators: Lisa Schwartz, McMaster & Matthew Hunt, McGill
This qualitative study aimed to investigate provision of palliative care within humanitarian response, including the ethical dimensions for health care providers and experiences of affected individuals and care-givers. The study explores four case studies based on different types of humanitarian settings, and includes a literature review, an organisation-based survey, and key informant interviews.
The study successfully completed a literature review, an organisation-based survey and qualitative interviews with humanitarian policy-makers, healthcare providers (local and international), individuals living with palliative care needs, and their caregivers. Case studies were developed from the emergency response for displaced Syrian refugees in Jordan, a protracted refugee setting in Rwanda, the 2014-15 Ebola outbreak in Guinea, as well as from global emergency response to natural disasters.
Further research is under development with collaborating organisations to explore effective models of palliative care in humanitarian action.
Get an overview of the research relating to palliative care in two refugee camps in Rwanda in this research snapshot.
Get an overview of the research relating to palliative care in natural disaster response in this research snapshot.
Two Research Snapshots produced summarising findings of the research (see above)View
How televisions can change disease perception & reduce stigmaView
A brief comparison of Influenza, 1918-1919, and Ebola, 2014-2015View
The study “Aid When there is ‘Nothing Left to Offer’” included a case study focusing on palliative care in Ebola Treatment Centres (ETCs) in Guinea during the 2014-16 outbreak. Its…View
Many situations arise in humanitarian crises when curative care is not the primary, or the only, mode for humanitarian healthcare: a woman with advanced cancer who has been forced to…View
On February 9th, the Humanitarian Health Ethics Research Group launched the first global survey on palliative care in humanitarian situations. This survey forms part of a larger R2HC-funded study led…View
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