Epilepsy-related stigma and cost in two onchocerciasis-endemic areas in South Sudan: A pilot descriptive study

Stephen Raimon Jada, Joseph Nelson Siewe Fodjo, Gasim Abd-Elfarag, Moses Tionga, Jane Y. Carter, Makoy Yibi Logora, Charles Newton, Robert Colebunders
10
August
2020
Output type
Journal article
Location
South Sudan
Focus areas
Mental health and psychosocial support (MHPSS)
Topics
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Epilepsy is a major public health concern in sub-Saharan Africa. This is particularly so in resource-limited rural villages where people with epilepsy are often faced with a wide treatment gap, stigma and the high cost of care.

The study found:

  • That people with epilepsy in rural South Sudan reported low-moderate perceived stigma.
  • Stigma correlated with epilepsy cost &; was associated with traditional medicine use.
  • Addressing epilepsy misconceptions and improving its treatment would reduce stigma.


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Mental health and psychosocial support (MHPSS)
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Africa
South Sudan
Amref Health Africa