Epilepsy-related stigma and cost in two onchocerciasis-endemic areas in South Sudan: A pilot descriptive study

Stephen Raimon Jada, Joseph Nelson Siewe Fodjo, Gasim Abd-Elfarag, Moses Tionga, Jane Y. Carter, Makoy Yibi Logora, Charles Newton, Robert Colebunders
10
August
2020
Output type
Location
South Sudan
Focus areas
Mental health and psychosocial support (MHPSS)
Topics
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Epilepsy is a major public health concern in sub-Saharan Africa. This is particularly so in resource-limited rural villages where people with epilepsy are often faced with a wide treatment gap, stigma and the high cost of care.

The study found:

  • That people with epilepsy in rural South Sudan reported low-moderate perceived stigma.
  • Stigma correlated with epilepsy cost &; was associated with traditional medicine use.
  • Addressing epilepsy misconceptions and improving its treatment would reduce stigma.


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Mental health and psychosocial support (MHPSS)
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Africa
South Sudan
Amref Health Africa