Incontinence is often considered a condition related to age or disability, yet best estimates indicate that almost 1 in 10 children aged seven will leak urine during the day; and up to 1 in 5 children aged five will wet the bed. Prevalence rates may be higher in emergency contexts as exposure to stress can contribute to bedwetting in children.
If children with incontinence face barriers to accessing facilities and services to manage the condition, their physical health can suffer (rashes, infections, pressure sores, dehydration). They can also miss out on educational opportunities, and have increased protection risks due to stigma.
There is little guidance specifically applicable to children participating in research and programming in emergency contexts. Researchers can therefore feel overwhelmed by the decisions that need to be made to determine whether and how children participate in research being conducted in such complex settings. But very little is known about how displaced children understand and experience health, and particularly sensitive conditions such as incontinence.
The Leeds-led partnership will therefore co-create qualitative participatory data collection tools to better understand the toileting behaviours of children aged five to 11. The project will also seek to understand child and caregiver awareness, understanding of and attitudes towards incontinence.
Read the first part of Leeds exploration of ethically conducting research with childrenView
Read the second part of Leeds series, and learn how they developed their storybook methodologyView
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